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Funded Grants

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Building the Rick Hansen Alberta Spinal Cord Injury Registry

Project Overview

There are an estimated 86,000 people living with a spinal cord injury (SCI) in Canada, with an annual economic burden of $2.67 billion for those surviving the initial injury. Approximately half of SCIs are the result of a traumatic (T) incident (ex. motor vehicle accident, sports injury) and the other half are from a non-traumatic (NT) cause (ex. infection or tumor pressing on the spine, or deterioration of the bones surrounding the spinal cord). Surviving SCI results in many costly and complex physical, emotional and social challenges for the person with SCI as well as their families and caregivers. Long-term tracking of these issues in the form of a registry may help us understand and treat them better. The Rick Hansen Institute (RHI) has been collecting information on people with a TSCI since 2005 in their national research registry. With the support of the RHI team, as well as the Brain Canada Platform Support Grant, Dr. Ho and his team aimed to improve on the existing registry and include the long-term tracking of persons with NTSCI through these goals: 1) Design of a provincial SCI registry to include both TSCI and NTSCI patients. 2) Expansion of the information collected (ex. demographic, medical, health costs and resource use) to answer specific research questions. 3) Implementation of a new model for the long-term follow-up of SCI patients by shifting the collection and follow-up to our community partners, Spinal Cord Injury Alberta. The long-term medical information will soon be collected as part of the standard follow-up clinic visits. 4) Evaluation the challenges of someone caring for a person with an SCI. The information collected will highlight the needs for people with an SCI across their lifetime, as well as the funding and resources required to support them.

Principal Investigator

Chester Ho , University of Calgary

Team Members

Monica Gorassini, University of Alberta

Vivian Mushahwar, University of Alberta

Vanessa Noonan, Rick Hansen Institute

Andrew Nataraj, University of Alberta

Brad Jacobs, University of Calgary

Dalton Wolfe, Lawson Health Research Institute

Luc Noreau, Université Laval

Patrick Whelan, University of Calgary

Partners and Donors

Alberta Paraplegic Foundation

Hotchkiss Brain Institute - University of Calgary

Project Ongoing

Building the Rick Hansen Alberta Spinal Cord Injury Registry

  • Program Type

    Platform grants

  • Area of research

    Injury

  • Disease Area

    Other

  • Competition

    2014 Platform Grants

  • Province

    Alberta

  • Start Date

    2014

  • Total Grant Amount

    $832,395

  • Health Canada Contribution

    $416,197

Contact Us

1200 McGill College Avenue
Suite 1600, Montreal, Quebec
H3B 4G7

+1 (514) 989-2989 info@braincanada.ca

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Territorial acknowledgement

The offices of Brain Canada Foundation are located on the traditional, ancestral territory of the Kanien'kehá:ka Peoples, a place which has long served as a site of meeting and exchange amongst nations. We honour and pay respect to elders past, present and emerging, and dedicate ourselves to moving forward in the spirit of partnership, collaboration, and reconciliation. In our work, we focus our efforts on the Truth and Reconciliation Commission’s Calls to Action, particularly those that pertain to improving health for Indigenous Peoples and that focus on advancing our own learning on Indigenous issues.

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