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Understanding how pain varies and its effect on well-being in children and youth with cerebral palsy: A mixed methods study

Project Overview

Ms. Shearer’s study is the first to address the knowledge gap related to multiple short-term pain fluctuations, the temporal association of pain trajectories on well-being, and the experiential assessment and data triangulation of pain trajectories and their impact, all using self-reported data. The results will inform Canadian health care providers about the importance of: 1) inquiring about and monitoring pain frequently, 2) identifying a need for enhanced pain management, and 3) addressing the impact of pain (modifiable factor) on well-being in children/youth. This study is conceptually innovative because it considers the presence of a time lag between pain and well-being. This study is methodologically notable as it will 1) include youth with cerebral palsy (CP) as research advisors for the qualitative study, and 2) use a mixed methods design to better conceptualize pain and validate findings from both study components. The research objectives are (1) to determine whether pain trajectories impact self-reported physical, psychological and social well-being four weeks post-baseline measurement in a cohort of individuals with CP, aged 8 to 18 years, attending two Ontario pediatric treatment centres (2a) to identify fluctuations in pain (pain trajectories) over a four-week period; and (2b) To describe children and youths’ accounts of their pain experiences and the impact pain has on their physical, psychological and social well-being.

Principal Investigator

Heather Shearer , Holland Bloorview Kids Rehabilitation Hospital

Partners and Donors

Holland Bloorview Kids Rehabilitation Hospital

Project Complete

Understanding how pain varies and its effect on well-being in children and youth with cerebral palsy: A mixed methods study

  • Program Type

    Capacity building grants

  • Area of research

    Central Nervous System

  • Disease Area

    ALS

  • Competition

    Brain Canada - Kids Brain Health Network Training Awards

  • Province

    Ontario

  • Start Date

    2018

  • Total Grant Amount

    $36,667

  • Health Canada Contribution

    $18,334