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Trajectories of psychopathology and validation of the Ontario Child Health Survey—Emotional Behavioural Scales (OCHS-EBS) for children with juvenile idiopathic arthritis: a longitudinal, mixed-methods study

Aperçu du projet

Research in the mental health of children with juvenile idiopathic arthritis (JIA) is growing, but gaps in our understanding remain. We will address these gaps by: 1–studying how the mental health of children with JIA changes and identify which children experience the largest changes over time; 2–describing what mental health means to caregivers and children with JIA, and how do they know when their mental health changes; and, 3–testing if the Ontario Child Health Survey—Emotional Behavioural Scales (OCHS-EBS) can be used to accurately measure mental health in childhood JIA.
Caregivers and children (2-16 years) diagnosed with JIA will be recruited from outpatient clinics at McMaster and Alberta Children’s Hospitals. Both hospitals serve sociodemographically-diverse populations. Online surveys will be sent to participants at recruitment, 6, 12, and 18 months. Child mental health will be measured using the OCHS-EBS and the Mini International Neuropsychiatric Interview (MINI-KID; a standardized instrument used a reference in testing the OCHS-EBS). Other measures will include disease activity, disability, parent mental health, and family resources. Statistical models will describe mental health changes over time and if the OCHS-EBS is an accurate measure (O1 & O3). A sample of caregiver-child dyads will be invited to interviews to understand the diversity of their experiences (O2). Participants will be recruited based on the child’s age and gender identity, as well as family ethnicity and socioeconomic status.
Our findings can be used for early identification and treatment of mental health in children with JIA. Understanding the impact of having JIA on mental health will allow us to develop individualized mental health services and supports. If the OCHS-EBS is found to be accurate, it will provide clinicians with a measure which can be used to assess changes to mental health and routinely be incorporated into national and international registries.

Chef d'équipe

Mark Ferro , University of Waterloo

Partenaire et Donateurs

Cassie + Friends

Projet en cours

Trajectories of psychopathology and validation of the Ontario Child Health Survey—Emotional Behavioural Scales (OCHS-EBS) for children with juvenile idiopathic arthritis: a longitudinal, mixed-methods study

  • Type de subvention

    Team grants

  • Domaine de recherche

    Mental Health

  • Disease Area

    Mental illness

  • Compétition

    Addressing Mental Health in Paediatric Rheumatic Diseases Team Grants

  • Province

    Ontario

  • Date de Début

    2024

  • Montant total du financement

    $240,000