From Substitution to Participation: Recognizing Persons with Dementia as Social Citizens
The Canadian Charter of Rights for People with Dementia states that persons with dementia must receive the support needed to participate as fully as possible in decisions that affect them. Yet people living with dementia are often excluded from participating in decisions. This study will co-develop materials that provide direction on how to better support people living with moderate dementia to participate in decisions that affect them. We will co-develop these materials with people living with moderate dementia and their care partners, including people with marginalized intersecting identities. This project aims to empower people living with moderate dementia, including marginalized persons, to share their experiences of being supported in or excluded from decision-making.
Tamara Sussman , McGill University
Partners and Donors
Alzheimer Society of Canada